The ‘Power’ to Do Good: Patient-Centered Research Using Real-World Data
A Capitol Hill Briefing on the Value of Patient-Centered Outcomes Research & the Digital Infrastructure Facilitating Such Work
September 12, 2019 | 12:00 p.m. – 1:30 p.m. | Dirksen G-11
Lunch and Networking to begin at 11:45 a.m. EST
Nearly a decade in the making, the National Patient-Centered Research Network (PCORnet) harnesses the power of real-world data from electronic health records, claims data, registry data, and other sources to enable more efficient and statistically significant research than previously possible. Started with support from the Patient-Centered Outcomes Research Institute, PCORnet answers clinical questions that impact everyone’s lives and supports studies addressing major public health issues.
Please join the American Medical Informatics Association (AMIA) and the Friends of PCORI Reauthorization to learn from experts in the field who are conducting patient centered outcomes research and are at the ground-level evolving this national network in our fast-changing health data ecosystem. We will also discuss some of the privacy, consent, and security considerations of distributed research and the role of PCORnet in advancing American innovation.
• Abel Kho, MD, Director Institute for Public Health and Medicine, Center for Health Information Partnerships, Northwestern University
• Russ Waitman, MD, PhD, Director of Medical Informatics, University of Kansas Medical Center
• Neely Williams, MDiv., Ed.D(c), Administrator & CEO, Community Partners’ Network
This is a widely attended event. Box lunches will be served.